[Vhfcn-l] Good By

Tue Feb 7 01:44:36 EST 2023

Back around 1975, my wife had similar symptoms. Her father ad grandfather were never correctly diagnosed wit it. We were living in Bucksport, Maine. One of her docs referred her to a neurologist in Bangor. In ten minutes he diagnosed her. She had heredatory motor sensory neuropathy, also named for the three Docs who discovered it; Charcot Marie Tooth disease or CMT. The Bangor Doc diagnosed her by pressing on several pressure points. Some Docs say there is no such thing because they were not taught it in medical school. Pat went white water canoeing, climbed mountains and took up sled dog racing. Chiropractors understand this. She had an outstanding chiropractor. Fibromyalgia is 0art of the complex. This is hereditary. One of her brothers had it and her other brother and sister dd not. 

We were married 53 years. She died six years ao. I am the fourth generation in my family to be married 50 years or more.Swedes tend to be reliable. Pat was valedictorian of her high school class, had two masters degrees and was the national women’s field archery champion when she was still in high school. Quite a gal. We have two sons. One has HMSN and one does not. I have referred a few people to the Neurologist in Bangor over the years. The patients and neurologist are happy to get the referrals form "the guy that knows”.

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> On Feb 6, 2023, at 8:53 PM, Don Armstrong via Vhfcn-l <vhfcn-l at lists.vhfcn.org> wrote:
> 
> Years ago as I suffered through wandering pains and spasms the doctors all wrote me up as a hypochondriac because it would flare up badly at one point on my body for about 3 months then fade out and start up elsewhere. Doing my own research , actually I found an article on the front page of the inquirer while standing at the cash register line at a local supermarket I found the answer. The article said 5 million suffer from mystery ailment that take 7 years to discover. I looked and the article mentioned 35 different things that Fibroymialghia caused. Outside of no menstrual cycle troubles I hit everyone of the other effects. The article then refereed to the arthritis foundation that got me connected to a doctor that could properly test me. The test was very simple. She just poked at multiple spots on my back , shoulders and neck and I ended up looking like a puppet with spasms going off all over the place. It took several days for it to calm down.  When I went back to both the outside doctors and the VA doctors with my info they both said "Why did you not tell us about all the symptoms". I then pulled out their paper copies and pointed out their shorthand said "Patient displaying to many symptoms will only concentrate on one or two." Then both the outside doctors and the VA said "You are massively depressed but don't know it." I dropped the outside doctor because they wanted to bury me in pain meds and mind controlling drugs. The VA prescribed one med that arthritis doctors recommended but just increased the dosage which made me a zombie. Then they added in more meds until three times a day I was taking 7 different meds. I could barely function and when the doctors asked how my day went I said "I get up take pills and go back to bed then I get up and take pills and go back to bed which is entire day." When asked how the pain was I responded with "still there". They tried to increase the dosage and I went to the chief of rheumatology and said "I want off of all drugs".  It turns out 5 rugs were for various things and two more were to counteract side effects of the first 5 drugs. She said "You want to do life style acceptance?"  I told here I am better off knowing what hurts me every day and avoid the triggers".  I then had her do a write up explaining why I was not taking drugs. Less than 3 months later I had doctors claiming I was refusing treatment and I then produced the write up to explain why. It turns out the triggers are foods that never used to bother me plus lack of sleep from nightmares from Vietnam. I get weird looks when someone looks at my records and sees "Nightshades" as an alergine. I then explain it's potatoes , tomatoes , tobacco and derivatives. Glucose syrup , vitamin d3 and vitamin a Palmite are derived from potatoes. Modified food starch is also from potatoes. A bunch of spices are in the same group. After avoidance for multiple months the symptoms dropped off. But to this day I still have doctors that refuse to believe me and instead try to stuff me full of meds claiming "you are massively depressed but just don't know it." I always respond with "Let me take a 1X6 and slap you flat across your back and as soon as pain shows up you have a choice take some antidepressants or have me stop hitting you"  I get nasty looks.
> 
> On 2/5/2023 9:05 PM, AOL Member Info via Vhfcn-l wrote:
>> I am with you, an honest doctor should be able to tell whom needs the medicine and who does not cut off the doctors that are pushers and leave actual patients alone.
>> 
>>  
>>     On Friday, February 3, 2023 at 06:26:15 PM MST, Bruce E. Carlson via Vhfcn-l <vhfcn-l at lists.vhfcn.org> wrote:
>>    Have to say Good By.  ☹  I took a Percocet a little while ago after breaking through snow drifts to fill the horse tank.  I also took one yesterday.  Black helicopters are circling the house and “Ninja Narcos” are repelling around the house.  I am being charged with being responsible for all the Fentanyl deaths in the country since 1842.
>> 
>> This whole thing is a crock.  However, someone has to be blamed and I am on record.  The fact of my being a Chronic Pain patient since 1973 with multiple replacement parts, X-Rays that make a Doctor wince is further proof of my guilt.  At least that is how I am made to feel when I want an occasional refill.  The problem of street drugs has NOTHING to do with personal responsibility, Mr. Biden’s welcome mat on the border for the “import” of these drugs, or alike.  It is all caused by people with chronic pain getting treatment.  Kinda like outlawing gun ownership to law abiding people is going to stop Felons from having guns.  Or wait, it is illegal for Felons to have guns.
>> 
>> Gotta love the “Progressive” snowflake world.
>> 
>> 
>> Respects -- Bruce
>> 
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> -- 
> Don Armstrong cavman at dtroop35cav.org
> 604th Trans / 52nd CAB, Pleiku, Apr / July 68
> D Troop 3/5 Cav, Bearcat /Dong Tam , July 68 May 69
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